Sunday, February 8, 2009

Maddi's Story - Alopecia Areata

Meet Maddi, she's an amazing 17 year old with such a zest for life. She's the most adorable young women I've ever met, and I'm proud to say I'm her aunt Michelle. Maddi's mom and I have been friends for 33 years. We met when we were only 7 years old. That's a long time. I was there when I heard the news that my friend Heather was pregnant and I was there to change those dirty diapers. I remember thinking that Maddi was the most beautiful baby I had ever laid eyes on. I was shocked when I heard about this terrible disease that has effected sweet Maddi. To be honest I was completely ignorant to this disease. What amazes me about Maddi is that she never lets this disease bring her down or stop her from doing the things that make her happy. She has such a positive attitude about life it just blows me away. Can you imagine being a teenage girl and losing all your hair? I would of been horrified if this had happened to me during my teenage years. My hope is that in sharing this beautiful video that Maddi's mom created, it will help other kids and their parents out there cope with this awful disease. This is Maddi's story. ** PLEASE SHARE THIS VIDEO WITH YOUR FAMILY, FRIENDS, CO-WORKERS, ETC. HELP US RAISE AWARENESS ABOUT THIS DISEASE, AND THE PEOPLE WHO CAN HELP.




Thanks so much for taking the time to visit me today.

127 comments:

  1. Poor kid! :( High school is brutal! I'm glad that they found wigs4kids. I knew about Alopecia because I was a hair stylist for 25 years, but I did not know how desastating it could be. I have only seen in on a small scale and usually the women were older and going through stressful times. I hope that Maddie's condition clears up soon, but if it doesn't, she has her family to and her Auntie to help her. Thank you for the informative video.

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  2. I've just recently learned a bit about this disease and I also remember that I had a friend in middle school that must have been suffering from it too although I didn't know it at the time.

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  3. What an awful thing for a teenager to go through. Her friends sound like they were very supportive, but I can't believe the school was so awful about it. I can't imagine anyone being that insensitive. I hope things work out great for Maddi.

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  4. I had a teacher that had this when I was in high school. Thanks for sharing!

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  5. What a beautiful, brave girl! She really is adorable! Sorry about the kids, they can be so cruel! ((Hugs to Maddi))!

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  6. What a beautiful video. It's a very good idea to do a video to inform people. I have a cousin that has this. He is a boy and I don't think as hard for him. A girl loves her hair.

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  7. How very touching - thanks for sharing!

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  8. Amazing. She is truly wonderful. Thank you for introducing us to this video.

    ReplyDelete
  9. Thanks to all for your kind comments! I'm Maddi's mom, Heather. Please keep this video circulating to keep people informed of this disease. It really has no predjudices, and can strike anyone at anytime! Thankfully, it's not fatal, and Maddi has come to love her wigs! I have had a hard time convincing people that Wigs 4 Kids is a better option than the alternative that charges families for hairpieces and wigs. Between our Kinesiologist and Wigs 4 Kids, Maddi can lead a normal teenage life!
    Thanks again to all!

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  10. Thanks for raising awareness about AA!

    ReplyDelete
  11. Thanks so much for raising awareness about AA! My 3 year old daughter has it and she has nothing but some fuzz on the back of her head-Maddi gives me hope for my daughter when she will become a teenager! :)

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  12. Thank you for sharing this beautiful video. Just this morning I went to do my daughter's hair and there it was....an oval shaped patch of hair missing, smooth...it happened in only a few days. As I am trying to figure out what to do....I ran across your page! I am praying for you all and for such a wonderful organization. I am expecting that my beautiful daughter may someday need an organization such as this!

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  13. I am completly heart broken and cried my eyes out during this video. My 2 year old baby girl has been diagnosed with Alopecia Areata and since her daddy deployed she has lost most of her hair. I have noticed these past few months since the drastic hair loss that she will no longer allow anyone to take pictures of her and just recenlty while looking in the mirror she called herself ugly.. my heart is broken because I want to spare her the pain. I keep researching into this condition but I still don't understand and I keep thinking it will come back and try to foget about it but it keeps getting worse. Please help me find my way with this so that I can help her. She is so beautiful. She asked me yesterday to put her in a pony and she had a few hairs left in the back of her haid so I tried and with in minutes she was on to somthing new. I have not discussed this with her but I feel that it is time and I don't know how to tell her. She will be 3 in a few months. Please email me any info at merfy31@hotmail.com. Thank you so much for sharing her story it made me wake up and face the truth.

    Meredith

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